Rebecca Mass-Krajewski (she/her) 

Rebecca, a Board Certified Family Nurse Practitioner and Medical Detective, founded The EDS clinic to bridge gaps in healthcare for conditions like EDS and POTS. Her personal journey with these conditions inspired her to create comprehensive care programs and train other providers. With a holistic approach, Rebecca aims to reduce chronic pain and fatigue, empowering patients with the knowledge to advocate for themselves and achieve genuine recovery. She is committed to transforming the landscape of chronic illness care.

Jodiann Allen (she/her)

Jodiann, our IT guru, combines technical acumen with human connection. With certifications in Computing, Business Studies, and Internet Governance, she excels in online education, creating engaging digital learning environments. Jodiann supports Rebecca by managing all the technology, allowing seamless medical detective work. Her dedication to continuous learning and innovation drives organizational efficiency and success. Jodiann's holistic approach ensures technology enhances every aspect of her work.

Kimberly Kitzerow (she/her)

Kimberly, an expert in neurodivergence, autism, and EDS, turned her daughter's nonverbal autism diagnosis into a broader mission. She earned degrees in education, conducted exhaustive research, and helped her daughter gain speech. A polymath, Kimberly meticulously mapped biochemical links between EDS and its comorbidities. An author and sought-after speaker, she plans to pursue a PhD, amplifying support and understanding for families affected by these complex conditions. Her work is pioneering and continues to expand. You can learn more about Kimberly and her work HERE, including socials.

Lynn Frair (she/her)

Lynn, an RN and healthcare navigation expert, began as a self-taught investor from the age of 12. After a brain tumor wiped out her savings in her 20s, she rebuilt her investments and semi-retired at 40. Founder of FI Healthcare, Lynn co-created the nation's first multivariable healthcare cost calculator of its kind. Passionate about healthcare and biology, she explores connections between Autism Spectrum and Ehlers Danlos Connective Tissue Disorders, aiming to enhance quality of life for those with these conditions. Lynn's passion and insights come from living with both conditions herself.

May Vincoy (she/her)

May, a compassionate Healthcare Assistant and Registered Pharmacist, brings dedicated experience to healthcare support. She enhances patient experiences and optimizes healthcare operations with her profound knowledge and skills. Passionate about making a tangible difference, May connects patients to vital resources. Outside of work, she enjoys photography and reading about science and medicine, constantly expanding her horizons and understanding of the world. May's empathy and relentless quest for growth define her professional and personal life.

Leah Franklin (they/them)

Leah is a nurse consultant with over ten years of nursing experience and a Bachelor of Nursing from Johns Hopkins University. With a clinical approach heavily informed by their personal journey with hEDS and related conditions, their career is marked by a commitment to community health and personalized care for chronic and rare diseases. Invigorated by the power of scientific innovation to advance health outcomes, Leah is seeking to pursue a PhD in nursing, with diverse research interests including disability, omics, precision medicine, narrative medicine, and iatrogenic harm.