About the EDS Clinic
Our Mission
Our mission at The EDS Clinic is to provide results-oriented expertise for the diagnosis and treatment of hypermobility, hEDS & the related disorders to enable a total body transformation with less body pain and less fatigue.
Our Values
We value: Self-trust, Health, Rest, Connecting, Empathy, and Knowledge.
The EDS Clinic
We feel strongly that love is love, science is real, black (brown & all melanated) lives matter, trans rights are human rights, neurodivergence is valuable and beautiful, and women's rights are tied up in all of our own liberation.
We will fully support you with accommodations and accessibility in any way possible during our time together. You are not a burden. Mainstream healthcare exists in a culture of ableism and exclusion.
Our Pledge
Our Team:
Rebecca Mass-Krajewski (she/her)
Rebecca, a Board Certified Family Nurse Practitioner and Medical Detective, founded The EDS clinic to bridge gaps in healthcare for conditions like EDS and POTS. Her personal journey with these conditions inspired her to create comprehensive care programs and train other providers. With a holistic approach, Rebecca aims to reduce chronic pain and fatigue, empowering patients with the knowledge to advocate for themselves and achieve genuine recovery. She is committed to transforming the landscape of chronic illness care.
Learn MoreJodiann Allen (she/her)
Jodiann, our IT guru, combines technical acumen with human connection. With certifications in Computing, Business Studies, and Internet Governance, she excels in online education, creating engaging digital learning environments. Jodiann supports Rebecca by managing all the technology, allowing seamless medical detective work. Her dedication to continuous learning and innovation drives organizational efficiency and success. Jodiann's holistic approach ensures technology enhances every aspect of her work.
Lynn Frair (she/her)
Lynn, an RN and healthcare navigation expert, began as a self-taught investor from the age of 12. After a brain tumor wiped out her savings in her 20s, she rebuilt her investments and semi-retired at 40. Founder of FI Healthcare, Lynn co-created the nation's first multivariable healthcare cost calculator of its kind. Passionate about healthcare and biology, she explores connections between Autism Spectrum and Ehlers Danlos Connective Tissue Disorders, aiming to enhance quality of life for those with these conditions. Lynn's passion and insights come from living with both conditions herself.
May Vincoy (she/her)
May, a compassionate Healthcare Assistant and Registered Pharmacist, brings dedicated experience to healthcare support. She enhances patient experiences and optimizes healthcare operations with her profound knowledge and skills. Passionate about making a tangible difference, May connects patients to vital resources. Outside of work, she enjoys photography and reading about science and medicine, constantly expanding her horizons and understanding of the world. May's empathy and relentless quest for growth define her professional and personal life.
Leah Franklin (they/them)
Leah is a nurse consultant with over ten years of nursing experience and a Bachelor of Nursing from Johns Hopkins University. With a clinical approach heavily informed by their personal journey with hEDS and related conditions, their career is marked by a commitment to community health and personalized care for chronic and rare diseases. Invigorated by the power of scientific innovation to advance health outcomes, Leah is seeking to pursue a PhD in nursing, with diverse research interests including disability, omics, precision medicine, narrative medicine, and iatrogenic harm.
There is Hope.
There is hope for invisible illnesses like HEDS, POTS & MCAS when you have a Medical Detective who is a results-oriented expert.
Want direct support and immediate relief?
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