We do medical mysteries and invisible (not imaginary) chronic illness! Here at The EDS Clinic, you don't need to explain yourself. We already believe you. Our founder and CEO Rebecca Mass-Krajewski (she/her) ARNP-BC has been honing her skills for years. She is a "professional patient" with HEDS, POTS, Ankylosing Spondylitis, and other related issues.

Check out our About Us page for more information.

One common question we get is whether a formal diagnosis is necessary before addressing hypermobility issues or working with Rebecca. We are thrilled to say it isn't! You don't need a formal diagnosis to start reducing pain in a hypermobile body.

What matters is recognizing your hypermobility and its impact on you. Whether it’s an offhand comment, a suggestion from a specialist, or a lifelong feeling that’s now making sense, it’s beneficial to start before receiving an official diagnosis.

Delaying action for a diagnosis only prolongs pain. That's why Rebecca created the Hope for Hypermobility (H4H) program. In H4H, Rebecca shares the insights she wishes she’d had during her own journey, focusing on immediate strategies outside the mainstream medical system.

This program offers a unique approach to healthcare, providing transformative knowledge and healing. Completing H4H enables working 1:1 with Rebecca.

For more information HERE is a 2 minute video of Rebecca speaking to diagnosis.

One common question we get is whether a formal diagnosis is necessary before addressing hypermobility issues or working with me. We thrilled to say it isn't! You don't need a formal diagnosis to start reducing pain in a hypermobile body

What matters is recognizing your hypermobility and its impact on you. Whether it’s an offhand comment, a suggestion from a specialist, or a lifelong feeling that’s now making sense, it’s beneficial to start before receiving an official diagnosis.

Delaying action for a diagnosis only prolongs pain. That's why we created the Hope for Hypermobility (H4H) program. In H4H, Rebecca shares the insights she wishes she’d had during her own journey, focusing on immediate strategies outside the mainstream medical system.

Watch THIS extremely short video to learn why diagnosis is not essential before treatment.

Since Rebecca started The EDS Clinic she has been humbled and thrilled by the number of you who have sought support from us. 

However, there is only one of her…and as a specialist who is ALSO hypermobile just like you, it makes sense that she would be the practitioner you want to work with too.

Because her mission is to help every person like you reclaim their life, she had to be innovative about creating exactly the right service offering to help decrease pain, increase mobility, and build the heath and treatment regimen that we each need and deserve. Years of doing consults taught Rebecca that many were missing knowledge that could have helped them years before they began working with her. It was hard to see that what was simple to her after years of detective work was mind blowing to others.

So she built something that you won’t need to wait for an open appointment slot to access. The Hope for Hypermobility program is our self-guided course that includes all of the information you need to help you decrease pain by 25% in as little as 60 days. 

This program bridges the immense gap between the science and knowledge of hypermobility, and what it is truly like living in a hypermobile body. This is your homework to enable working 1:1 with Rebecca or another Medical Detective in the future. The only way to access 1:1 support from Rebecca directly is through the prerequisite of completing the program. Completing the program gives you access to a consultation with her, and from there you both decide if 1:1 work is a good fit for your needs. The only exception to the course prior to 1:1 with Rebecca is our Elite Membership.

In the H4H program some of you will experience such profound symptom relief that you won’t even require further treatment from Rebecca personally.

We do not do phone calls or consults before you complete H4H.

If you already have diagnoses of HEDS/HSD, POTS, MCAS and other related disorders we investigate connections, work you on complex chronic medication management, coordinate your healthcare team, and determine the best treatments for each issue.

We complete expert results-oriented evaluation, diagnosis and treatment of hypermobility and the associated disorders WHILE working toward HEDS/JHS diagnosis. A true diagnosis involves in depth labs, images, and genetic testing. EDS exists on a spectrum and has substantial overlap with other rare diagnoses. This is why it is a diagnosis of exclusion.  

We feel HEDS is a 1 in 250-500 person diagnosis (not 1 in multiple thousand as internet searches say). While the diagnosis checklist for HEDS appears simple, it requires investigation as there are many similar appearing zebra diagnoses.

We will see you for Hypermobility, HEDS/HSD, and everything in-between. There is huge overlap in complexity with these diagnoses and none can be looked at strictly in isolation. You want to feel better but it is hard when no one seems to believe you or understand your bendy body. 

If you are already diagnosed with Hypermobility, but think you have EDS we can determine the difference, order any tests or images needed, and resolve all the questions in your head.

Being a client at The EDS Clinic is an investment in yourself. 

We do not take insurance. But we do have sliding scale (HERE) and monthly installment plans. We provide superbills when requested.

Telemedicine means in any state we have a license in we can see you virtually for a visit. Currently these are in Washington state, Nevada, and Oregon. You have to physically be located in a state where our providers are licensed. Government rules, not ours.

We are working to expand The EDS Clinic to other states. If you are a licensed provider who would like to work in HEDS/HSD, POTS, MCAS, please grab a call with us HERE.

It is a virtual visit over video for Hypermobility, HEDS/HSD, POTS, MCAS and the related disorders. Simple as that! For most Hypermobile/EDS appointments there is no need to prove yourself by having pain triggered by a physical assessment. We are successful at Beighton scoring over video, as well as evaluating the many other areas that can lead to formal HEDS diagnosis. While it can be validating to be seen in-person, it is not critical. With other specialties like ortho, it is important to be seen in-person.

When you begin to work with us you receive immediate validation and investigation. 

Typically within 60 days you have less baseline pain and symptom flares. We work to decrease fatigue and see this around 90 days.  

We get results by using your short and long term goals. By stair stepping through accomplishing short term goals we are able to continually fine tune them for the long term goals. Goals include physical comfort, emotional well being with measurable activities. The work of the program is deliberately high-touch with accountability. 

Examples: 

Currently, your hips and knees do not tolerate the flight of stairs in your home. Short term you’d love to be able to go on a walk in the forest with a friend and long term you’d like to go to Scotland to walk around the castles. 

Currently, sciatica and neck pain keep you from sitting comfortably. Short term you’d love to sit on the floor to play with your friend’s kids and long term you’d love to have kids of your own and take them on a fun outing with them without calculating the physical or energy drain.

Currently, you barely make it out of bed from fatigue and dizziness. Short term you’d like to go out with your partner to a new restaurant and then a movie, and long term you’d like to go boating with friends in the summer.

Currently, you never go out to eat because you have to know where every bathroom is between home and the next stop. Short term you’d like to try a new restaurant, and long term you’d like to go to Spain, explore, and eat delicious food.

Results vary with the complexity and effort put into our work together. Clients who see and feel improvement working with us are motivated, have a degree of hope, and are ready to overhaul their chronic lives. 

Rebecca wanted to make a cost effective option available for treating hypermobility/hEDS/HSD, POTS, MCAS and the related disorders, so she compiled her decades of knowledge and personal experience into an easy-to-follow program. Hope for Hypermobility is our economical program that gives you the foundational knowledge needed living in a hypermobile body.

This means that simply joining and doing the materials in the course would actually bypass your need for further support. We want you to get relief, fast, for less.

If you need further financial accommodations please go HERE.

The EDS Clinic does not take insurance directly. If you chose to do the Superbill process for commercial insurance we can provide those to you.

Our Hope for Hypermobiles Course is immediately accessible and contains a decade of our research and results-oriented expertise.

Other Hypermobility & EDS resources in no particular order:

1. The Ehlers Danlos Society
2. Dysautonomia International
3. Hypermobility MD, Linda Bluestein MD & her Bendy Body Podcast
4. PRISM Spine and Joint
5. The Dysautonomia Project
6. The Mast Cell Disease Society
7. Up-To-Date Clinical
8. Manifestations and Diagnosis of EDS
9. EDS Virtual Conference 2022
10. International Symposium for EDS 2022